Thursday, January 08, 2009

Kuyler Update

The hearing specialist wants Kuyler to have three tests done at TC Thompson's Children's Hospital, an MRI, CAT scan and a hearing test. As of 5:00 yesterday, the nurse called and the CAT scan is scheduled for this Friday at 2:00. I am hoping that the other two tests can be done that day too, and I should know today if they were able to get it scheduled.

In addition to the hearing issues, now there is breathing issues. Kuyler has not slept through the night since he has been born and he wakes like every 1-2 hours. He is having trouble breathing. He makes so much noise when he sleeps that I do not sleep for checking on him. I have him sleeping at a 45-degree angle and he still grunts and makes noises.

Well at the doctor's visit, Kuyler was sitting up making these same noises so he checked his ears, noise and mouth to see if he was congested, but he was not. So, the doctor thinks that there is a small chance that the flap in his nasal cavity that should have dissolved by now has not and it is causing him to have difficulty breathing.


I am scared out of my mind thinking that he is going to stop breathing at any moment! Now that I know the breathing noises he is making are not just normal baby noises, I feel bad for getting frustrated about losing so much sleep at night, when all along my little guy has been struggling to breathe.

Please think of Kuyler when you pray and ask Him to heal my little guy.

Cendy

1 comments:

Liana said...

Praying all will turn out good! Did you get the appointment Friday?